Hyper Mobility and Ehler Danlos Syndrome

Dr Shelley Parker DC. FMP

May 2023

Hyper mobility syndrome. It's a subject close to my heart. Literally.

My own journey involves chronic back pain, Hashimotos, ADHD, mast cell issues.... I was told I'm 'over sensitive' or a hypochondriac for most of my young life. I battle with constant transient aches and pains, as a young person, it made it hard to fit in.

At 32yrs old I was finally 'heard' and referred to a wonderful Rheumatologist Dr Fraser Burling. Dr Burling was the first doctor to understand the pieces of my puzzle. I am a phenotype Ehler Danlos (EDS) mostly affected with sacroiliac issues, lower back, the random lower neck issue, A LOT of gastro disfunction and the classic EDS 'everything hurts' syndrome.

As a chiropractor, this changed how I view chronic pain and I questioned how to serve my patients best. I went on to study a postgraduate technique called Sacral Occipital Technique (SOT), after having my own incredible experience with SOT.

SOT has made the biggest impact on my professional practise and my own health. In 2020 I studied a post graduate in Functional and Integrative Medicine, learning how to help people find and treat the root cause of chronic issues. And I trained in functional movement and strengthening for hyper mobile and pain patients.

Most importantly, I was my first patient. From being a spinal surgical candidate for relentless, debilitating back pain, to being an active equestrian, gym person, chiropractor, business owner and Mum..... I healed myself first.

My practice is filled with incredible battlers. The unheard and misunderstood. You matter to me. I am welcoming you to come join our tribe.

The Hyper Mobile Facts:

Hyper mobility can range from classical (genetic) Ehlers-Danlos or one it's 13 subtypes or being someone on the hyper mobile spectrum - with only a few joints involved.

Hyper mobility is a connective tissue issue that affects the joints, ligaments and other connective tissues in the body. It is characterised by increased flexibility and joint mobility beyond the normal range of motion. Some people can do 'circus tricks' - others have chronic pain, fatigue, GI issues and mental health challenges.

What is Connective Tissue?

Connective tissue provides support, structure, and elasticity to various parts of the body, including joints, ligaments, tendons, and skin.

What is Joint Hyper mobility?

Joints that can move beyond the typical and expected range of motion. This increased flexibility can affect various joints, such as the sacroiliac joints, fingers, wrists, elbows, shoulders, hips, knees, and ankles.

What are some symptoms of Hyper mobility?

The primary symptom of hyper mobility syndrome is joint hyper mobility. However, people may also experience joint pain, recurring joint dislocations or subluxations (partial dislocations), joint instability, easy bruising, chronic fatigue, muscle weakness, and soft or velvety skin. Some people may also have gastrointestinal issues, such as irritable bowel syndrome (IBS) or slow GI motility.

What are some symptoms that are less recognised or misunderstood?

There are a multitude of issues that people may experience, the following is just a few.

Autonomic dysfunction which refers to problems with the autonomic nervous system. This can manifest as symptoms like dizziness, lightheadedness, orthostatic intolerance (difficulty standing upright), rapid heart rate, low blood pressure POTTS and digestive issues.

Chronic fatigue is a common complaint in individuals with hyper mobility syndrome. It can be debilitating and significantly impact daily functioning and quality of life.

Gastrointestinal issues including irritable bowel syndrome (IBS), abdominal pain, bloating, constipation, or diarrhoea.

Sleep issues such as difficulty falling asleep, staying asleep, or experiencing un refreshing sleep.

Mental Health Challenges, There is a higher prevalence of some mental health conditions, such as anxiety disorders and depression, among individuals with hyper mobility syndrome. ADHD (attention-deficit/hyperactivity disorder) is also reported in some individuals. There is further research needed in this area.

How do I know if I have this?

Diagnosing hyper mobility syndrome involves a combination of medical history, physical examination, and sometimes additional tests. The Beighton Score is commonly used to assess joint hyper mobility. It measures flexibility in specific joints and assigns a score based on the range of motion achieved. In some cases, genetic testing may be done to identify any underlying genetic mutations associated with hyper mobility disorders.

How can I manage life with it?

There is hope! Dr Shelley provides gentle treatment primarily focused on alignment, self regulation, nervous system optimisation, movement patterns, improving quality of life and strengthening muscles.

Utilising functional, integrative medicine, lifestyle modifications and a holistic approach all is a part of the puzzle for our hyper mobile patients.

Dr Shelley aims to be a key role in a multi discipline approach. This is working with GPs, Specialists, Physios, PTs, Dentists, Dietitian's and other professionals for the best outcome for her patients.